By the looks of their home, Tony and Christine Clark are raising two rambunctious 7-year-old boys. Model train tracks and Monopoly pieces are scattered on tables and cartoons flicker on the TV set.
But the Clarks’ two sons are grown men who share only the same interests and emotional fluctuations of little boys. Like the character portrayed by Brad Pitt in the 2008 film "The Curious Case of Benjamin Buttons," Matthew, 39, and Michael, 42, are aging backwards.
Diagnosed with a terminal form of leukodystrophy, one of a group of extremely rare genetic disorders that attack the Myelin, or white matter, in the nervous system, spinal cord, and brain. In the Clarks’ case, the condition has not only eroded their physical capacities, but their emotional and mental states as well.
Only six years ago, both brothers were holding down jobs and growing their families. Today, they spend their days in the care of their parents, both in their sixties, playing with Mr. Potato Head, fighting over Monopoly, and in rare lucid moments, struggling to understand why their lives have changed so dramatically.
Before the Clark Brothers were diagnosed, they were living independent lives. Michael served in the Royal Air Force and later became a cabinet maker. Matthew worked in a factory and was raising a teenage daughter. Tony and Christine, meanwhile, had retired and moved from the UK to Spain. Then in 2007, both of their sons fell off the radar. They stopped returning their parents’ calls and texts, and as the Clark brothers’ conditions developed, their lives fell apart.
Michael surfaced in a soup kitchen, and was referred to medical experts by social workers. After an MRI scan, he was diagnosed with the incurable degenerative disorder. Soon after Matthew received the same news. In the U.S. alone, about 1 in 40,000 children are born with a form of the neurodegenerative disease, according to Dr. William Kintner, President of the United Leukodystrophy Foundation. While some forms of the disorder are potentially treatable if discovered in the earliest stages and not all cause an emotional regression, the brothers are unlikely to be cured. "It’s very difficult to do anything once progression has occurred," Dr. Kintner tells Yahoo! Shine.
Credo: A Nietzschean Testament by Jonathan Bowden 2014 11 26
This lecture by Jonathan Bowden was given at the 11th New Right meeting in London on September 8, 2007. The original title of the presentation was “The Art and Philosophy of Jonathan Bowden.”
I think ideas are inborn, and you’re attracted, if you have any, toward certain systems of thinking and sensibility and response. From a very young age, I was ...
A Look Back at the OJ Simpson Verdict -- Reactions 2014 11 26
This is a look back at the different reactions to the OJ Simpson verdict some 20 years ago (exact date of verdict was Oct 3, 1995). The OJ Simpson jury consisted of 9 Blacks, 1 Hispanic, and 2 Whites. It would raise eyebrows after they only deliberated for 4 hours in a case that they were involved in for almost ...
New York Times Publishes Darren Wilson’s Street Address and Photo of House #Ferguson 2014 11 26 Hey here are the two @nytimes scumbags that published Wilson’s home address. —> @juliebosman & @campbellnyt— Ben Howe (@BenHowe) November 25, 2014
Michael Brown’s Stepdad Shouting ‘Burn This Bitch Down’
The New York Times published information about the address of Ferguson Police Officer Darren Wilson on Monday in a move that has generated controversy. Tensions are running high in Ferguson, Missouri, as ...
How Monsanto is Destroying the Brains and Health of Everyone 2014 11 25 Interested in slowing your aging process? Take note!
One of my most recent blog entries summarized roughly 10 years of research related to the consequences of inflammatory processes in the periphery of the body, such as the gut, and how this was driving brain degenerative inflammatory processes within the brain.
One of the key findings from that research was how pathogenic ...
Guccifer: Pennsylvania City to be Nuked Next Year 2014 11 25
From Youtube: Renowned hacker Guccifer, who accessed the private emails of numerous top military, political and intelligence leaders, told the New York Times that a city in Pennsylvania is the target of a nuke attack in 2015. Guccifer also revealed that he is sitting on an archive of hacked emails that have not been publicly released.