By the looks of their home, Tony and Christine Clark are raising two rambunctious 7-year-old boys. Model train tracks and Monopoly pieces are scattered on tables and cartoons flicker on the TV set.
But the Clarks’ two sons are grown men who share only the same interests and emotional fluctuations of little boys. Like the character portrayed by Brad Pitt in the 2008 film "The Curious Case of Benjamin Buttons," Matthew, 39, and Michael, 42, are aging backwards.
Diagnosed with a terminal form of leukodystrophy, one of a group of extremely rare genetic disorders that attack the Myelin, or white matter, in the nervous system, spinal cord, and brain. In the Clarks’ case, the condition has not only eroded their physical capacities, but their emotional and mental states as well.
Only six years ago, both brothers were holding down jobs and growing their families. Today, they spend their days in the care of their parents, both in their sixties, playing with Mr. Potato Head, fighting over Monopoly, and in rare lucid moments, struggling to understand why their lives have changed so dramatically.
Before the Clark Brothers were diagnosed, they were living independent lives. Michael served in the Royal Air Force and later became a cabinet maker. Matthew worked in a factory and was raising a teenage daughter. Tony and Christine, meanwhile, had retired and moved from the UK to Spain. Then in 2007, both of their sons fell off the radar. They stopped returning their parents’ calls and texts, and as the Clark brothers’ conditions developed, their lives fell apart.
Michael surfaced in a soup kitchen, and was referred to medical experts by social workers. After an MRI scan, he was diagnosed with the incurable degenerative disorder. Soon after Matthew received the same news. In the U.S. alone, about 1 in 40,000 children are born with a form of the neurodegenerative disease, according to Dr. William Kintner, President of the United Leukodystrophy Foundation. While some forms of the disorder are potentially treatable if discovered in the earliest stages and not all cause an emotional regression, the brothers are unlikely to be cured. "It’s very difficult to do anything once progression has occurred," Dr. Kintner tells Yahoo! Shine.
Pegida's Multi - Culti (state) Agenda! 2016-02-08 4:49 This guy raises some very interesting points regarding the recent PEGIDA launch in the UK and around Europe.
Make sure to check out the videos below. The focus on the criticism descends into a Nazi accusation contest. "No no THEY are the REAL Nazi's."
Pegida UK is fronted by Tommy Robinson, Paul Weston and Anne Marie Waters. They held a demo in ...
Sweden plans to expel up to 80,000 asylum-seekers (that didn't seek asylum) 2016-02-08 3:58
Sweden intends to expel up to 80,000 migrants who arrived in 2015 and whose application for asylum has been rejected, Interior Minister Anders Ygeman said Wednesday.
Ed: Wait, so they are in the country despite being rejected asylum? How did that happen and who let them in then?
"We are talking about 60,000 people but the number could climb to 80,000," the ...
An Occupied Country 2016-02-06 5:42
When people refer to occupation governments or occupied countries, the first thought is often of military occupation—the garrisoning of foreign troops in one’s cities and civil administration by their military executives. The other vision is the trope of a cabal of Haredim sitting in a darkly-lit boardroom with a map of the world on the wall, a dated reading of ...
Immortal Symbols 1941 2016-02-06 2:07
Youtube description: Dutch film "Eeuwig Leevende Tekens" by Hamer - "Volksche Werkgemeenschap" (Folkish Study Group) - ancestral heritage, solar wheel, sun cross, tree of life, etc.
Subs by Otharus - http://fryskednis.blogspot.com